Voicing Caregiver Experiences

Wellbeing and Recovery Narratives for Caregivers

This project, jointly run by Sussex Partnership NHS Foundation Trust and the Scottish Recovery Network, responds to a gap in caregivers’ understanding of recovery by building on work already undertaken by both partners to find out what recovery means for caregivers of people with longer-term mental health issues. The Scottish Recovery Network previously ran a small project on the experience of recovery for caregivers. This involved speaking with groups of caregivers in different parts of Scotland and sharing the findings in a report called Carers and Supporting Recovery (Parr, 2009). In Sussex, Life Story Work that actively named and reframed experience was key to Voicing Psychotic Experiences (VPE), an earlier collaboration with people who experience psychosis to name what both recovery and psychosis meant to them and to offer practice points to front line workers and other people experiencing psychosis (Chandler & Hayward, 2009). The method used in VPE was supported storytelling in which the editors took a hands-off approach to narrative content and format but offered support for each author’s preferred storytelling style, as well as flexibility when authors were not well enough to write. Follow-up interviews with VPE authors suggested that the process itself was as helpful as the output in supporting their recovery, and this was an experience shared in Scotland within similar projects founded on people’s recovery narratives.

Voicing Caregiver Experiences
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  • Create Date 24 January 2021